Recommended resources


Cancer Council
The Cancer Council website is a reliable source of information on brain cancer.

The booklet Understanding Brain Tumours – A guide for people with brain or spinal cord tumours, their families and friends, is available online or you can call 13 11 20 to order a free printed copy.

Brain Tumour Alliance Australia (BTAA)
BTAA is a national brain tumour patient and caregiver organisation in Australia. Their website has resources and links to useful websites, fact sheets and booklets.

The Brain Tumour Charity
This is a UK-based charity dedicated to providing support and information for people with a brain tumour, their families and friends.

Cure Brain Cancer Foundation
This foundation is dedicated to improving brain cancer research, advocacy and awareness in Australia.


The Brain Tumour Charity: Fatigue and brain tumours
This can be viewed as a web page or printed fact sheet. It provides information on brain cancer-related fatigue and strategies for coping with this fatigue.

National Brain Tumour Society: Brain Tumours and Fatigue
This two page fact sheet discusses the causes of fatigue in people with brain cancer and strategies that can help manage fatigue.

Brainstrust: My Fatigue Book
This 60-page downloadable book helps patients and carers to understand what is meant by fatigue and to self-manage brain cancer-related fatigue.




BrainLink: Legal and Financial Matters
This fact sheet explains a number of legal and financial matters including making wills, powers of attorney and guardianship, managing finances and financial assistance.


Accessing the NDIS
Reasonable and necessary supports

This resource covers some of the ins and outs about the National Disability Insurance Scheme; the FAQ section is particularly helpful.

Every Australian Counts
This website has useful information and resources to help navigate the NDIS


Brainstrust: Exercise and Rest
This fact sheet has information about exercise when living with brain cancer.


The Brain Tumour Charity: Communication difficulties
This fact sheet has information about brain tumours and communication. This includes information about communication difficulties and tips to improve communication.


Flinders University: Work after Cancer
This website has information to support work during and after a cancer diagnosis. It provides advice to people diagnosed with cancer, their loved ones, clinicians and employers about their options, rights and responsibilities.

Cancer Council: Cancer, Work & You
This information can be viewed online, PDF download or as a free hard copy booklet.

Brainstrust: Your Brain Tumour and Work
This page has information on working after treatment, patients’ rights, access to work and information for employers.

The Brain Tumour Charity: Employment and brain tumours
This page provides useful resources to help you stay in, return to, or look for work.


BrainLink: Driving
This fact sheet discusses specific problems that can affect driving, how to get a driving assessment and how to support a family member who is no longer safe to drive.

Fact sheets
Fitness to Drive
Assessing Fitness to Drive


Queensland University of Technology: It’s okay to ask
This booklet includes questions to ask your healthcare team about your brain cancer. It was written in collaboration with brain cancer survivors, family members and health professionals and is available in 10 languages.


The Brain Tumour Charity

The Brain Cancer Group
This website has information about general brain cancer research and links to a set of factsheets about changes to thinking and behaviour.

Cancer Council: Understanding changes in thinking and memory


Cancer Council: Sexuality, Intimacy and Cancer: A guide for people with cancer and their partners.
This guide is a very useful resource.

Better Health: Brain injury and sexual issues
This fact sheet discusses causes of sexual problems and resuming sex after brain injury

Information for Carers, Family & Friends

Carers Victoria is an organisation that focuses on the needs of people in a caring role. The Carer Advisory Line can provide some short-term counselling options, referral information and support. You can contact them on 1800 242 636 and find more information online.

The Brain Cancer Group is a group of health professionals based in New South Wales who have compiled some useful information around cognitive changes, coping with emotional changes and fatigue.

The Brain Tumour Charity: Supporting a loved one with brain cancer
This page offers useful information and fact sheets for people who support a family member or friend with brain cancer.

Peace of Mind Foundation run a series of weekend retreats and opportunities for patients and families to get additional support.

Support Groups


Brain Space:
Brain Space is a group for younger people affected by brain cancer (aged 18-39). The group meets four times a year. For more information and to attend email or call 9496 3315.

Brain Tumour Support Group (FF):
The Brain Tumour Support Group is open to all people diagnosed with a brain tumour, as well as their family, friends and carers. The group meets at the ONJ Wellness Centre and shares lunch together in a safe and relaxed environment. Activities include peer discussion, education sessions and therapeutic activities delivered by health professionals. The group meets on the second Wednesday of every month. For more information and to attend email or call 9496 3315.

Cabrini Brain Tumour Support Group (FF):
This support group is open to anyone living with brain cancer, their friends and families. The group meets monthly (Last Thursday) at Cabrini Malvern. You do not need to be a Cabrini patient to join this group. The group is facilitated by health professionals. Living with Cancer Education program – Brain Cancer, is hosted annually. More information: 03 9508 1514 or


Brain Tumour Support Group Australia is a closed Facebook group. It is moderated by people with the direct experience of living with a brain tumour or brain cancer.


The Grey Matters Cancer Support Group meets on the third Monday of the month throughout the year at the Carlton North Library. This group welcomes people with benign brain tumours or low-grade brain cancers and their family members and friends. Activities center on peer discussion and social activities but also include relaxation activities and a variety of other events. A gold coin donation is requested, but not compulsory, to attend.

For more information call the Cancer Council on 13 11 20, email or visit


The Wellness Centre at BRICC has a Brain Cancer Support Group open to brain cancer patients, carers, friends and family members. The group meets the first Tuesday of the month throughout the year, at the BRICC Wellness Centre, Ballarat Base Hospital.

To book, contact the Wellness Centre Coordinator, Simone Noelker, on 5320 8614 or


Telephone Support Groups:
The Cancer Council hosts Brain Tumour Telephone Support Groups for people diagnosed with a malignant brain tumour. They are held on the first and third Monday of the month throughout the year (1.30 – 2.30pm AEST). Each group has three to seven members and two qualified facilitators. For more information or to join call the Cancer Council 13 11 20 or email

Telephone Support Groups (FF):
The Cancer Council hosts Telephone Support Groups for people who are providing care for a family member, friend or loved one with a cancer diagnosis. They are held on the second and fourth Monday of the month (1.30 – 2.30pm AEST). Each group has three to seven members and two qualified facilitators. The Cancer Council will connect you to an appropriate group. For more information or to join call the Cancer Council 13 11 20 or email

Cancer Connect:
Cancer Connect is a telephone peer support service that connects someone who has cancer with a specially trained volunteer who has had a similar cancer experience. A Connect volunteer can provide practical information, emotional support and hope. For more information call the Cancer Council on 13 11 20 or submit your details online.

Family Connect (FF):
Family Connect is a telephone peer support service that connects family and friends of someone with a cancer diagnosis with a specially trained volunteer who has had a similar cancer experience. A Connect volunteer can listen with understanding and share their experiences and ways of coping. For more information call the Cancer Council on 13 11 20 or submit your details online.

Online Community (FF):
The Cancer Council Online Community offers people currently living with cancer, cancer survivors, families, friends, carers and the wider cancer community the opportunity to connect, share experiences and find information and support in a safe forum.


The Peace of Mind Foundation runs a monthly Brain Cancer Support Group in Geelong that features a variety of guest speakers (including dietitians, psychologists and researchers). The group welcomes patients, carers, friends and family members living in the Geelong/Surf Coast region, and offers social activities as well as a safe place to discuss feelings and share stories. The group also provides a children’s program in conjunction with the support group so adults can attend sessions while their children are being looked after in the room next door.

To register as a member phone the group facilitator Bec Picone on 0411 382 457 or email her at

Worksheets and Checklist download

Fatigue strategies checklist

Return to work checklist

Return to driving checklist

Making a plan worksheet